Out-of-the-Box Advocacy on NCLD

I’m excited to share that I have been invited by the National Center for Learning Disabilities (NCLD) to write a new blog series about parent advocacy.

The series will appear on the NCLD’s LD Insights blog and will include tips for parents on how to use non-traditional advocacy methods to take advocacy for their kids with learning differences and special needs to a whole new level!

Check out the first post about using social media to broaden your LD community, find great resources and enhance your advocacy efforts.

Please let me know what you think, and be sure to share your favorite Twitter handles and Facebook pages related to LD in the comments section below the article on LD.org.

 

Moms study up on advocacy for their kids with differences

A version of this piece was originally posted on March 13, 2012, on the Advocate magazine’s Far North Dallas blog as part of the ongoing series, “Will You Be My Advocate?” by Lyn Pollard.

It’s been a few weeks since I’ve posted about my neighborhood support & study group for children with differences. But,  some very exciting things have been happening within our small but growing group of local parents who have been gathering monthly to learn about how they can become strong advocates for their children with learning disabilities, autism, ADHD, special needs and other differences.

To better describe our group to ourselves and our community, we are now officially “branded” – as the KDDs Support & Study Group.

KDDs = Kids with Differences & Disabilities

We are a group of parents (so far just moms) who meet monthly to talk and learn about how we can support our children with differences. We even have a shiny new private Facebook group where we can share comments, events and links among group members.

Our group has been steadily growing in size, activity and interest. We started out last fall with just a few moms in my neighborhood. However, due to an increased interest by parents in my ISD and surrounding communities, for our March meeting, we invited parents and had several attendees from other neighborhoods in the North Dallas and Richardson, TX communities.

As our KDDs group is growing, I am simultaneously reaching out to moms from other neighborhoods and encouraging them to start up their own KDDs groups with friends living close by. This is exciting news, because the more KDDs groups that pop up around the Dallas and Richardson areas, the more parents can get involved.

For example, our March KDDs group, which met last Thursday, filled the living room of one mom’s home with mothers of students from three different local elementary schools – (ironically just a block away from the Shelton School, renowned as one of the best private schools for kids with learning differences in the country).

And the conversation has never been better.

One mom shared about how her son had recently experienced an “ah-ha” moment during class of suddenly understanding that his brain works differently – and how that’s OK.

Another mom talked about the struggle of just making the decision to attend the KDDs group, because attending meant that she was entering an unknown world with an unfamiliar conversation – one that she wasn’t sure that she was ready to join. These feelings were in spite of her strong desire to help her child who had been recently diagnosed with a learning difference.

As the group facilitator, I personally shared about how I am working to rebuild trust with my child’s school district after losing faith during previous interactions with ISD administrators who provided inaccurate information about how and when they were legally-obligated to assess my child for dyslexia, among other things. Throughout the KDDs meeting, I focused the group’s conversation on the importance of building a strong working relationship with our children’s campus teams, even when it’s very difficult, so that our kids can benefit as much as possible from ISD-provided services.

The KDDs conversations have been real, honest and most of all open. The group provides a safe place to open up and share what’s really on our minds as parents who are helping our kids go through things that we never thought they would go through.

While most parents spend countless hours planning for and dreaming about their child’s future, no parent ever plans for having a child with a difference.

That’s why seeking support to help through the process of acceptance, education and planning for your child with differences or disabilities is so important. And that’s what KDDs is all about.

The main purpose of the KDDs group is two-fold. First, KDDs gives parents a place where they can get to know other families in their communities who are facing the struggles that come with having a child with differences and special needs.

Second, KDDs aims to educate parents on how they can be the best advocates for their children, by teaching advocacy skills, positive communication strategies and providing resources to help educate parents about special education and disabilities laws at both a state and federal level.

The more KDDs groups, or groups with a similar purpose, that we can successfully plant across our community, the more parents will know that they are not alone.

There are many families who are facing the heartache and triumphs of raising a child with a difference. The more we come together, the greater we will be encouraged start new conversations about what works, what doesn’t and what we are doing to help improve both education services and life in general for our children.

Plus, the more informed and educated parents become about their role as advocates for their children with differences, the more equipped they will be to participate effectively in their children’s special education, IEP/ARD and 504 meetings with their local public schools. This will benefit not only our children, but serve to improve the process of working within the system that our government has established to protect kids with differences within our public schools and beyond.

Are you a parent seeking support in your journey as a parent of a child with differences? Interested in getting involved in a KDDs group in your neighborhood? Or, perhaps you are part of a similar study and support group in your area?  I would love to hear from you. Please comment below to share your thoughts and ideas.

For more information on parent advocacy for children with learning disabilities, special needs and more, visit the new Different Doodles Pinterest page for links to other resources and organizations that can provide help, education and support.   You can also follow me on Twitter @DiffyDoodles and on the Different Doodles page on Facebook.

Welcome to Different Doodles!

After months of pining and planning, I am excited to announce the launch of my new informational website and blog, DifferentDoodles.com – a place to embrace  learning differences.  (Please excuse the rough graphics and blank pages  - the site itself is still under construction!)

My vision for the site:  A place to embrace what makes your child different. 

Kids with learning differences are one-of-a-kind, just like every other kid out there!   What makes these kids extra-special is their intelligence, creativity, areas of giftedness and often a unique ability to think outside the box. 

The things that make our children different are also what make them who they are.  Who wants to be the same as everybody else, anyway?  BORING!  

When we embrace our kid’s differences (and in the process, often learn to embrace our own!) we as parents can teach our kids to love who they are, accept their limits, and by doing so, allow them the opportunity to focus full-throttle on their gifts and talents instead of on their weaknesses.

Why all the passion?  I am the extremely proud mother of two children who think, play and learn differently. Over the past 7 years (since we first noticed at the age of 2 that our son might be both gifted and have a learning difference), I have made it my mission to become an educated, passionate and capable parent advocate for my kids. 

Bringing it All Together:  During this journey, I have relied on countless online resources, books, magazine articles, therapists, educators, physicians, experts, mentors and friends to help inform and guide me.  I have often wished for a one-stop source that combines many of these resources into one online space.  I hope that DifferentDoodles.com will meet this need for many different folks seeking information and guidance about learning differences.

A Place for Parents:  Also along the way, I have met many wonderful parents of children with learning differences.  I have also met many more parents who think their child may have a learning difference, but don’t know exactly where to start.  Other parents I have encountered are struggling with gaining acceptance  from family members, their school districts or even themselves.  They need help in identifying, understanding and communicating the needs of their special children.   These families need both encouragement and guidance on what to do for their children, and how to do it.

The Solution?  Build an online space where parents, family members, friends and teachers can come to quickly and easily access information about learning disabilities such as Dyslexia, Dysgraphia and Dyscalculia as well as ADHD and high-functioning Autism (like Asperger’s and PDD-NOS).

I also envision the site as a place to learn about and discuss Twice Exceptional children (kids who are both gifted and have a learning disability), and to learn and share more about the 2e concept and how it is helping to define and enhance gifted children’s abilities, talents and contributions to our modern society.

Plus, since I’m lucky enough to be a Texan, Different Doodles will also provide specialized information for Texas parents on what’s currently happening in our state regarding students with learning differences and special needs.  Additionally, in the future, I will be adding information to the site about other state laws regarding dyslexia, and comparing the impact these laws have on Dyslexia programs in public schools across our nation through commentaries posted on the Different Doodles blog.

Let’s face it – we’re talking here about some truly special kids with interesting differences.  So why not provide a creative, intelligent and fun space to learn and share about what really makes these kids tick?  I envision an open, interactive space where parents, grandparents, kids, teachers and more can both find information sources and share their knowledge and experiences with supporting, teaching and loving people with learning differences.

I hope and pray that Different Doodles will be source of encouragement, help and hope  for parents and loved ones of children and adults with learning differences, ADHD and/or high-functioning Autism.

Stay tuned for more soon!  We’re just getting started…

~Lyn Pollard