Out-of-the-Box Advocacy on NCLD

I’m excited to share that I have been invited by the National Center for Learning Disabilities (NCLD) to write a new blog series about parent advocacy.

The series will appear on the NCLD’s LD Insights blog and will include tips for parents on how to use non-traditional advocacy methods to take advocacy for their kids with learning differences and special needs to a whole new level!

Check out the first post about using social media to broaden your LD community, find great resources and enhance your advocacy efforts.

Please let me know what you think, and be sure to share your favorite Twitter handles and Facebook pages related to LD in the comments section below the article on LD.org.

 

Moms study up on advocacy for their kids with differences

A version of this piece was originally posted on March 13, 2012, on the Advocate magazine’s Far North Dallas blog as part of the ongoing series, “Will You Be My Advocate?” by Lyn Pollard.

It’s been a few weeks since I’ve posted about my neighborhood support & study group for children with differences. But,  some very exciting things have been happening within our small but growing group of local parents who have been gathering monthly to learn about how they can become strong advocates for their children with learning disabilities, autism, ADHD, special needs and other differences.

To better describe our group to ourselves and our community, we are now officially “branded” – as the KDDs Support & Study Group.

KDDs = Kids with Differences & Disabilities

We are a group of parents (so far just moms) who meet monthly to talk and learn about how we can support our children with differences. We even have a shiny new private Facebook group where we can share comments, events and links among group members.

Our group has been steadily growing in size, activity and interest. We started out last fall with just a few moms in my neighborhood. However, due to an increased interest by parents in my ISD and surrounding communities, for our March meeting, we invited parents and had several attendees from other neighborhoods in the North Dallas and Richardson, TX communities.

As our KDDs group is growing, I am simultaneously reaching out to moms from other neighborhoods and encouraging them to start up their own KDDs groups with friends living close by. This is exciting news, because the more KDDs groups that pop up around the Dallas and Richardson areas, the more parents can get involved.

For example, our March KDDs group, which met last Thursday, filled the living room of one mom’s home with mothers of students from three different local elementary schools – (ironically just a block away from the Shelton School, renowned as one of the best private schools for kids with learning differences in the country).

And the conversation has never been better.

One mom shared about how her son had recently experienced an “ah-ha” moment during class of suddenly understanding that his brain works differently – and how that’s OK.

Another mom talked about the struggle of just making the decision to attend the KDDs group, because attending meant that she was entering an unknown world with an unfamiliar conversation – one that she wasn’t sure that she was ready to join. These feelings were in spite of her strong desire to help her child who had been recently diagnosed with a learning difference.

As the group facilitator, I personally shared about how I am working to rebuild trust with my child’s school district after losing faith during previous interactions with ISD administrators who provided inaccurate information about how and when they were legally-obligated to assess my child for dyslexia, among other things. Throughout the KDDs meeting, I focused the group’s conversation on the importance of building a strong working relationship with our children’s campus teams, even when it’s very difficult, so that our kids can benefit as much as possible from ISD-provided services.

The KDDs conversations have been real, honest and most of all open. The group provides a safe place to open up and share what’s really on our minds as parents who are helping our kids go through things that we never thought they would go through.

While most parents spend countless hours planning for and dreaming about their child’s future, no parent ever plans for having a child with a difference.

That’s why seeking support to help through the process of acceptance, education and planning for your child with differences or disabilities is so important. And that’s what KDDs is all about.

The main purpose of the KDDs group is two-fold. First, KDDs gives parents a place where they can get to know other families in their communities who are facing the struggles that come with having a child with differences and special needs.

Second, KDDs aims to educate parents on how they can be the best advocates for their children, by teaching advocacy skills, positive communication strategies and providing resources to help educate parents about special education and disabilities laws at both a state and federal level.

The more KDDs groups, or groups with a similar purpose, that we can successfully plant across our community, the more parents will know that they are not alone.

There are many families who are facing the heartache and triumphs of raising a child with a difference. The more we come together, the greater we will be encouraged start new conversations about what works, what doesn’t and what we are doing to help improve both education services and life in general for our children.

Plus, the more informed and educated parents become about their role as advocates for their children with differences, the more equipped they will be to participate effectively in their children’s special education, IEP/ARD and 504 meetings with their local public schools. This will benefit not only our children, but serve to improve the process of working within the system that our government has established to protect kids with differences within our public schools and beyond.

Are you a parent seeking support in your journey as a parent of a child with differences? Interested in getting involved in a KDDs group in your neighborhood? Or, perhaps you are part of a similar study and support group in your area?  I would love to hear from you. Please comment below to share your thoughts and ideas.

For more information on parent advocacy for children with learning disabilities, special needs and more, visit the new Different Doodles Pinterest page for links to other resources and organizations that can provide help, education and support.   You can also follow me on Twitter @DiffyDoodles and on the Different Doodles page on Facebook.

Will You Be My Advocate – New Blog Series on Parent Advocacy

Are you a parent of a child with learning differences or another special need?  Looking for support and encouragement in your neck of the woods?   A few weeks ago, I decided to start up a support and study group for moms dealing with these issues right in my own back yard.

Follow my new series here and on the local Advocate Far North Dallas blog about the neighborhood support group I’ve started for moms in my area who have children with learning differences or special needs.

Check out today’s blog post on the Advocate here 

Also, read a copy of the full article here:

Will You Be My Advocate:  Moms of Special Needs Children Connect Through Support Group

We all have our core group of friends – the women that you turn to when you need to talk about your kids or whatever else is going on in your life. But, when I recently decided that I needed to seek out specialized guidance and support to help me as I advocate for and make educated decisions about my kids with learning differences, I was amazed to discover that much of the support I needed was right in my back yard.

As a mother of two children who learn and play in a way that doesn’t always look like everyone else, I decided earlier this fall to start up a support and study group for moms in my area who have children with special needs and/or learning differences.  

And I didn’t have to look far. As a work-from-home mom, I’m pretty plugged into my school community and neighborhood, and already knew a few other moms nearby who have children with some sort of difference, be it ADHD, high-functioning autism, dyslexia or another learning differences or disability. And, as we began to talk openly about our kid’s challenges and our struggles in seeking appropriate testing, services and therapy for them, a bond began to form.  I quickly realized that the more we talked about what was going on with our kids – at after-school pick-up, play dates, soccer practices – the more other moms in our circle of friends began to share about similar situations in their own families.

As I listened, I learned that while we were all in different stages of discovery, advocacy and intervention for our kids, one thing we all seemed to have in common was the desire to feel accepted – both for our children and for ourselves. Having a child with a difference can be very isolating. You often feel like you don’t fit in with other moms, just like your kids probably feel like they don’t fit in with other kids. And one thing that seems to break down those walls of isolation is the ability to talk about what you are going through with someone who is going through it, too.

Before I knew it, I had formed a list of about a dozen families within less than a one-mile radius, whom I thought might be interested in the group. Most of these families live within walking distance of our home and our elementary school, which is right at the end of our street. It amazed me that there were so many other families going through exactly what we were, and so close by. I knew we had to somehow tap into each other for support and create a forum where we could learn and share.

So, I chose a date, sent out an email and made some coffee. Last month, at our first meeting, four moms sat in my family room and talked openly and honestly about exactly where we are with our kids. We started by sharing some background – what specifically is going on with our kids, where they struggle the most, where we struggle the most, and what we as parents are doing to try to help them. Some moms went into a lot of detail about their specific frustrations – working with the school district, their extended family’s lack of understanding about their children’s disabilities, financial struggles associated with lots of expensive testing and private therapy. You name it, we got into it.

The conversation was rich, honest and real. And the best part was that not once did I feel (as I often do when the subject comes up in day-to-day conversations) that I was whining and complaining, or that I was boring someone with details about my child that they didn’t understand or really care about. We all listened, and most of all, we all understood.

The group (which doesn’t even an “official” name yet) is planning to meet again this month. Since it’s the holidays, we’re going to start by sharing our “Wish Lists” of the things that we want the most for our children in the coming year. On my list is getting our school district to recognize my youngest child’s learning disability and give her an age-appropriate, accredited and intensive intervention program by a qualified teacher. I’m guessing that other moms will be wishing for better documentation of and evidence that their children’s special education services are being administered appropriately. Others just want their child to get appropriate testing and possibly diagnoses so they can know how to best address their needs.  And, I know that we all want to become better educated and more confident advocates for our children.

So, as the holiday season kicks into full gear, I am thankful for the possibilities of this new, nearby source of support and encouragement. Stay tuned on the blog as I chronicle the development of the group, what we are studying and how we are (hopefully) checking items off of our “Wish Lists” for our kids, one by one.

Do you have a child with a learning difference or other disability? I would love to hear about how you seek out and receive support in our community. Comment here or email me anytime.